Monday, August 19, 2013

Ten months after a total thyroidectomy

I suppose I should post a cancer update.

My ten monthiversary of my total thyroidectomy was yesterday. I was so busy that I completely forgot about it, which--after these past ten months--feels awesome that I can simply forget about my cancer.

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I've been feeling really great since the middle of June. June was a hard month and I found myself almost unable to walk because I was so fatigued. I needed to lean on my loves when I walked anywhere and I couldn't get off of the couch. My heart was racing and palpitating which led to needing to wear a heart monitor to make sure my hypocalcemia wasn't causing my irregular heartbeat. I felt miserable. And then my doctor increased my Synthroid dose from 125 to 150 and I quickly felt a huge improvement. These days I've got enough energy to go running! At one point I was taking 130-something pills a week. Now I am down to 56 measly pills per week!

And my scar is barely noticeable:

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Here's a progression of my thyroid scar from six days after surgery, to two months, six months, and today at ten months.

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My current plan of action is just to wait. The tumor was removed last October, I did RAI in May, and now my doctor said I don't need to come back until next year for my whole body scan. I don't know, I feel like I should be checking up sooner, a year feels like a really long time to wait especially since my breasts showed a lot of iodine uptake on my last scan. Because of the RAI I have an increased chance of breast cancer and leukemia and because I had just weaned Katie when I had the radiation I have an even higher chance of developing breast cancer. Maybe I'll call my endo in a few more months and request a blood test to check my thyroglobulin levels--if my TG levels are rising the cancer is growing--if anything it would give me peace of mind.

I've been cheating a bit. I'm supposed to take six calcium pills a day and I've only been taking two before bed. So far I am not feeling any tingling or heart palpitations so I'm hopeful that my parathyroid glands are finally recovering. Beating the hypocalcemia would sure make life a bit easier but I'm pretty sure I will always have to take calcium supplements.

The worst part about living day-to-day with cancer is taking my Synthroid. I take it first thing in the morning and cannot eat for 30 minutes after I take it and am not supposed to have calcium--like milk--for four hours afterwards. So when my husband wakes up and makes a nice surprise breakfast for the family I have to take my pill and wait before being able to eat. It's a small price to pay for a long and healthy life, but still it's frustrating to be so hungry and not be able to eat anything.

My endocrinologist says I should keep my stress at a minimum, get plenty of exercise, and eat healthy. Yesterday I ate cookies and milk for breakfast and lunch. I was busy running around, but still, inexcusable. Tasty, but inexcusable. It's hard to realize that I still have cancer when I feel so great. I'm no longer in pain, in isolation, or in the hospital. I'm so thankful that this year is almost over. I was diagnosed with cancer one month to the day after I turned twenty-nine and in two weeks I will be turning thirty. Twenty-nine was the worst year of my life thus far--aside from giving birth to my sweet little girl--and I'm praying for a clear WBS next year.

In the meantime I plan on living.